Living Well with Parkinson’s: Understanding and Supporting the Journey
At The Butler, we believe knowledge is empowering — especially when it comes to navigating complex health conditions like Parkinson’s disease. For individuals and families facing a diagnosis, understanding what’s happening in the body and how to manage symptoms is the first step toward maintaining quality of life and independence.
What is Parkinson’s Disease?
Parkinson’s is a progressive neurological condition that primarily affects movement. It occurs when certain nerve cells in the brain — especially those responsible for producing dopamine — become damaged or die. Dopamine plays a vital role in helping the body coordinate smooth, balanced muscle movements. When these levels decline, it can lead to a range of motor and non-motor symptoms.
The cause isn’t fully understood, but it’s thought to be linked to a mix of genetic and environmental factors. What’s important to know is that, while there is no cure, there are many ways to manage symptoms and continue living a full and meaningful life.
Common Symptoms of Parkinson’s
Parkinson’s looks different for everyone, but symptoms typically fall into two categories — motor and non-motor.
Motor symptoms may include:
Tremors: Involuntary shaking, especially at rest, often starting in the hands.
Bradykinesia: Slowness of movement, which can make everyday tasks more difficult.
Muscle rigidity: Stiffness in the limbs or torso, reducing flexibility.
Postural instability: Balance issues that can increase the risk of falls.
Non-motor symptoms — while less visible — can be just as impactful:
Sleep disturbances: Restless legs or REM sleep behaviour disorder
Mood changes: Anxiety, apathy, or depression
Fatigue: Not necessarily linked to activity
Managing Parkinson’s – Supporting Your Health and Lifestyle
Living with Parkinson’s is about more than managing symptoms — it’s about finding ways to stay active, connected, and supported. Here are some key strategies that can make a meaningful difference:
1. Stay Active — in Body and Mind
Regular physical activity helps maintain mobility, strength, and balance. Gentle exercise like walking, swimming, or tai chi can boost both physical and mental wellbeing. Activities that stimulate the mind — such as puzzles, reading, or music — also support cognitive health.
2. Medication Matters
Taking your medications on time, every time, is essential for keeping dopamine levels stable and avoiding uncomfortable ‘off’ periods. Pair medication with a large glass of water (on an empty stomach if directed), and always follow your treatment plan closely.
3. Hydration is Key
Staying hydrated supports medication absorption, reduces constipation, and regulates body temperature. Limit caffeine and alcohol, eat water-rich foods like fruits and vegetables, and keep a water bottle nearby throughout the day.
4. Sleep Well, Feel Better
Sleep can be disrupted by Parkinson’s, but simple changes can help:
Keep a regular bedtime and wake time
Get morning and evening sunlight
Avoid caffeine late in the day
Limit alcohol
Keep your bedroom cool, dark, and calm
Short naps (under 30 minutes, and not too late in the day) can also help restore energy.
5. Look After Your Mental Health
It’s natural to experience emotional ups and downs. Support for depression, anxiety, or feelings of isolation can make a real difference. Talking to a healthcare professional or connecting with others on a similar journey can provide both relief and perspective.
6. Make Home Safe and Comfortable
Small home modifications can help maintain independence and reduce fall risks. Think grab bars in bathrooms, non-slip flooring, and good lighting throughout the home.
You’re Not Alone
Parkinson’s is a journey that no one should have to walk alone. Building a support network — including healthcare providers, family, and community groups — can offer strength, clarity, and connection.
Organisations like Parkinson’s Australia and local resources in the ACT offer excellent information and support services.
Helpful links:
At The Butler, we’re here to help you or your loved one live well — with care that’s thoughtful, empowering, and always on your terms. If you’re navigating Parkinson’s and would like to talk about how we can support you at home, we’re only a phone call or coffee away.
